A time for patients to meet and share - 16th May

A time for patients to meet and share (online).

On May 16th there will be a new appointment of our “A time for patients to meet and share”.

Where patients and family members can meet, understand, find one another, share experiences, feelings, needs and all they are experiencing.
Also gather needs and ideas so that TUTOR can help all those who cope with a thymoma or a thymic carcinoma.

The meeting will be held in English at 5-6 PM central europe time (beware of time zone)

Upcoming events:
20 June
18 July
19 September
17 October
21 November
19 December

To participate, fill the form and you’ll receive a zoom’s link.

    First Name*

    Last Name*

    Email Address*

    City*

    Country/Region*

    Zip/Postal Code*

    State/Province*

    Phone*

    You are*


    Information you provide when registering will be shared with the account owner and host and can be used and shared by them in accordance with their Terms and Privacy Policy.

    Pursuant to the GDPR 2016/679, I declare that I have read the information for the processing of personal data and consent to their processing only and exclusively to the extent necessary for the pursuit of the purposes (the absence of consent affects the possibility of receiving information).
    I authorize the TUTOR Association to processing of personal data, for communications related to advocates activities and international meeting.
    Yes, I agree

    I authorize the TUTOR Association, free of charge, also pursuant to art. 10 and 320 cod. civ. and art. 96 and 97 law 22.4.1941, n. 633, Law on copyright, the use of photos or videos taken by operators or persons appointed by the Tutor Onlus association, for communication, publication and / or dissemination in any form on the website www.tumoritoracicirari.it, on social networks and on any other means of dissemination (newspapers or local newspapers), as well as authorizing the conservation of the photos and videos themselves in the IT archives of the same and acknowledges that the purpose of these publications are merely of an informative and possibly promotional nature and for institutional use. of the association, as well as authorizing the conservation of the photos and audio / video themselves in the computer archives of Associazione Tutor Onlus.
    Yes, I agree


    by Giorgio Leone

    Finding the missing pieces: Empowering collaboration. Patients and Physicians Unite Against Thymic Carcinoma and Thymoma- May 14th, 2024

    Finding the missing pieces: Empowering collaboration
    Patients and Physicians Unite Against Thymic Carcinoma and Thymoma

    3rd Webinar for PATIENTS with EURACAN ERN physician expert on THYMOMA and THYMIC CARCINOMA

    This webinar is aimed to share information on thymoma and thymic carcinoma, giving patients and caregivers the opportunity to have information directly from physician paramount  experts on thymic tumors and to listen to other patient’s experience in coping with Thymic tumors.
    It also aims to promote discussion among multidisciplinary speakers and promote collaboration between patient and physicians internationally.

    The webinar will be held in english.

    This webinar is dedicated to addressing the specific needs and concerns of person affected by thymoma and thymic carcinoma.
    Assembled in a virtual space, the webinar offers accessibility to patients worldwide, ensuring that they can participate regardless of geographical location.

    Throughout the event, the agenda is crafted to focus on providing answers to the most common questions faced by patients and caregivers: topics such as misdiagnosis, limited access to care, treatment complexities, emotional distress, lack of support resources,
    financial strain, and long-term survivorship challenges are all addressed.
    By facilitating collaboration among patients, healthcare professionals, and advocacy groups, the webinar aims to accelerate progress in research and treatment while empowering patients to take an active role in their care journey.

    A distinguishing feature of the webinar is the inclusion lecture where patients share their personal experiences. These firsthand accounts offer invaluable insights, empathy, and practical advice to others navigating similar challenges, creating a supportive
    community environment.
    The sessions will provide attendees with practical tools and insights to navigate their condition with confidence.
    Additionally, dedicated sessions on finding expert doctors, accessing clinical studies, and standardizing care seek to bridge information gaps and ensure equitable access to quality care for all affected individuals.

    Ultimately, the webinar is aimed to serve as a powerful platform for addressing patients and caregivers needs, fostering collaboration, and driving positive outcomes in thymic tumor management on a global scale.

    download the agenda

    Fill in the following form to register

      First Name*

      Last Name*

      Email Address*

      City*

      Country/Region*

      Zip/Postal Code*

      State/Province*

      Phone*

      Any questions for speakers? Please questions in english

      You are*

      Questions & Comments

      Information you provide when registering will be shared with the account owner and host and can be used and shared by them in accordance with their Terms and Privacy Policy.

      Would you be available to collaborate in setting up a Thymic Tumors patient’s group in your country?*

      Pursuant to the GDPR 2016/679, I declare that I have read the information for the processing of personal data and consent to their processing only and exclusively to the extent necessary for the pursuit of the purposes (the absence of consent affects the possibility of receiving information).
      I authorize the TUTOR Association to processing of personal data, for communications related to advocates activities and international meeting.
      Yes, I agree

      I authorize the TUTOR Association, free of charge, also pursuant to art. 10 and 320 cod. civ. and art. 96 and 97 law 22.4.1941, n. 633, Law on copyright, the use of photos or videos taken by operators or persons appointed by the Tutor Onlus association, for communication, publication and / or dissemination in any form on the website www.tumoritoracicirari.it, on social networks and on any other means of dissemination (newspapers or local newspapers), as well as authorizing the conservation of the photos and videos themselves in the IT archives of the same and acknowledges that the purpose of these publications are merely of an informative and possibly promotional nature and for institutional use. of the association, as well as authorizing the conservation of the photos and audio / video themselves in the computer archives of Associazione Tutor Onlus.
      Yes, I agree


      by Michi

      A time for patients to meet and share - 18th April

      A time for patients to meet and share (online).

      On April 18th there will be a new appointment of our “A time for patients to meet and share”.

      Where patients and family members can meet, understand, find one another, share experiences, feelings, needs and all they are experiencing.
      Also gather needs and ideas so that TUTOR can help all those who cope with a thymoma or a thymic carcinoma.

      The meeting will be held in English at 5-6 PM central europe time (beware of time zone)

      Upcoming events:
      16 May
      20 June
      18 July
      19 September
      17 October
      21 November
      19 December

      To participate, fill the form and you’ll receive a zoom’s link.

        First Name*

        Last Name*

        Email Address*

        City*

        Country/Region*

        Zip/Postal Code*

        State/Province*

        Phone*

        You are*


        Information you provide when registering will be shared with the account owner and host and can be used and shared by them in accordance with their Terms and Privacy Policy.

        Pursuant to the GDPR 2016/679, I declare that I have read the information for the processing of personal data and consent to their processing only and exclusively to the extent necessary for the pursuit of the purposes (the absence of consent affects the possibility of receiving information).
        I authorize the TUTOR Association to processing of personal data, for communications related to advocates activities and international meeting.
        Yes, I agree

        I authorize the TUTOR Association, free of charge, also pursuant to art. 10 and 320 cod. civ. and art. 96 and 97 law 22.4.1941, n. 633, Law on copyright, the use of photos or videos taken by operators or persons appointed by the Tutor Onlus association, for communication, publication and / or dissemination in any form on the website www.tumoritoracicirari.it, on social networks and on any other means of dissemination (newspapers or local newspapers), as well as authorizing the conservation of the photos and videos themselves in the IT archives of the same and acknowledges that the purpose of these publications are merely of an informative and possibly promotional nature and for institutional use. of the association, as well as authorizing the conservation of the photos and audio / video themselves in the computer archives of Associazione Tutor Onlus.
        Yes, I agree


        by Giorgio Leone

        A time for patients to meet and share - 21st March

        A time for patients to meet and share (online).

        On March 21st there will be a new appointment of our “A time for patients to meet and share”.

        Where patients and family members can meet, understand, find one another, share experiences, feelings, needs and all they are experiencing.
        Also gather needs and ideas so that TUTOR can help all those who cope with a thymoma or a thymic carcinoma.

        The meeting will be held in English at 5-6 PM central europe time (beware of time zone)

        Upcoming events:
        18 April
        16 May
        20 June
        18 July
        19 September
        17 October
        21 November
        19 December

        To participate, fill the form and you’ll receive a zoom’s link.

          First Name*

          Last Name*

          Email Address*

          City*

          Country/Region*

          Zip/Postal Code*

          State/Province*

          Phone*

          You are*


          Information you provide when registering will be shared with the account owner and host and can be used and shared by them in accordance with their Terms and Privacy Policy.

          Pursuant to the GDPR 2016/679, I declare that I have read the information for the processing of personal data and consent to their processing only and exclusively to the extent necessary for the pursuit of the purposes (the absence of consent affects the possibility of receiving information).
          I authorize the TUTOR Association to processing of personal data, for communications related to advocates activities and international meeting.
          Yes, I agree

          I authorize the TUTOR Association, free of charge, also pursuant to art. 10 and 320 cod. civ. and art. 96 and 97 law 22.4.1941, n. 633, Law on copyright, the use of photos or videos taken by operators or persons appointed by the Tutor Onlus association, for communication, publication and / or dissemination in any form on the website www.tumoritoracicirari.it, on social networks and on any other means of dissemination (newspapers or local newspapers), as well as authorizing the conservation of the photos and videos themselves in the IT archives of the same and acknowledges that the purpose of these publications are merely of an informative and possibly promotional nature and for institutional use. of the association, as well as authorizing the conservation of the photos and audio / video themselves in the computer archives of Associazione Tutor Onlus.
          Yes, I agree


          by Giorgio Leone

          A time for patients to meet and share - 15th February

          A time for patients to meet and share (online).

          On February 15th there will be a new appointment of our “A time for patients to meet and share”.

          Where patients and family members can meet, understand, find one another, share experiences, feelings, needs and all they are experiencing.
          Also gather needs and ideas so that TUTOR can help all those who cope with a thymoma or a thymic carcinoma.

          The meeting will be held in English at 5-6 PM central europe time (beware of time zone)

          Upcoming events:
          21 March
          18 April
          16 May
          20 June
          18 July
          19 September
          17 October
          21 November
          19 December

          To participate, fill the form and you’ll receive a zoom’s link.

            First Name*

            Last Name*

            Email Address*

            City*

            Country/Region*

            Zip/Postal Code*

            State/Province*

            Phone*

            You are*


            Information you provide when registering will be shared with the account owner and host and can be used and shared by them in accordance with their Terms and Privacy Policy.

            Pursuant to the GDPR 2016/679, I declare that I have read the information for the processing of personal data and consent to their processing only and exclusively to the extent necessary for the pursuit of the purposes (the absence of consent affects the possibility of receiving information).
            I authorize the TUTOR Association to processing of personal data, for communications related to advocates activities and international meeting.
            Yes, I agree

            I authorize the TUTOR Association, free of charge, also pursuant to art. 10 and 320 cod. civ. and art. 96 and 97 law 22.4.1941, n. 633, Law on copyright, the use of photos or videos taken by operators or persons appointed by the Tutor Onlus association, for communication, publication and / or dissemination in any form on the website www.tumoritoracicirari.it, on social networks and on any other means of dissemination (newspapers or local newspapers), as well as authorizing the conservation of the photos and videos themselves in the IT archives of the same and acknowledges that the purpose of these publications are merely of an informative and possibly promotional nature and for institutional use. of the association, as well as authorizing the conservation of the photos and audio / video themselves in the computer archives of Associazione Tutor Onlus.
            Yes, I agree


            by Giorgio Leone

            A time for patients to meet and share - 18th January

            A time for patients to meet and share (online).

            On January 18th there will be a new appointment of our “A time for patients to meet and share”.

            Where patients and family members can meet, understand, find one another, share experiences, feelings, needs and all they are experiencing.
            Also gather needs and ideas so that TUTOR can help all those who cope with a thymoma or a thymic carcinoma.

            The meeting will be held in English at 5-6 PM central europe time (beware of time zone)

            Upcoming events:
            15 February
            21 March
            18 April
            16 May
            20 June
            18 July
            19 September
            17 October
            21 November
            19 December

            To participate, fill the form and you’ll receive a zoom’s link.

              First Name*

              Last Name*

              Email Address*

              City*

              Country/Region*

              Zip/Postal Code*

              State/Province*

              Phone*

              You are*


              Information you provide when registering will be shared with the account owner and host and can be used and shared by them in accordance with their Terms and Privacy Policy.

              Pursuant to the GDPR 2016/679, I declare that I have read the information for the processing of personal data and consent to their processing only and exclusively to the extent necessary for the pursuit of the purposes (the absence of consent affects the possibility of receiving information).
              I authorize the TUTOR Association to processing of personal data, for communications related to advocates activities and international meeting.
              Yes, I agree

              I authorize the TUTOR Association, free of charge, also pursuant to art. 10 and 320 cod. civ. and art. 96 and 97 law 22.4.1941, n. 633, Law on copyright, the use of photos or videos taken by operators or persons appointed by the Tutor Onlus association, for communication, publication and / or dissemination in any form on the website www.tumoritoracicirari.it, on social networks and on any other means of dissemination (newspapers or local newspapers), as well as authorizing the conservation of the photos and videos themselves in the IT archives of the same and acknowledges that the purpose of these publications are merely of an informative and possibly promotional nature and for institutional use. of the association, as well as authorizing the conservation of the photos and audio / video themselves in the computer archives of Associazione Tutor Onlus.
              Yes, I agree


              by Giorgio Leone

              Video recording available on "Highlights from 2023 International congress on Thymic Tumor"


              It's now available the video-recording of "Highlights from 2023 International congress on Thymic Tumors”, organized by TUTOR, italian patient's organization, on 16th November 2023 with the partecipation of the following paramount panelist:
              Nicolas Girard, oncologist, Ist. Curie Paris, France
              Paolo Mendogni, thoracic surgeon, Policlinico Milano, Italy
              Andreas Rimner, radiation oncologist, Memorial Sloan Kettering, NY, US

              Please fill the below form and you'll receive the video-recording

                First Name*

                Last Name*

                Email Address*

                City*

                Country/Region*

                Zip/Postal Code*

                State/Province*

                Phone*

                You are*


                Information you provide when registering will be shared with the account owner and host and can be used and shared by them in accordance with their Terms and Privacy Policy.

                Pursuant to the GDPR 2016/679, I declare that I have read the information for the processing of personal data and consent to their processing only and exclusively to the extent necessary for the pursuit of the purposes (the absence of consent affects the possibility of receiving information).
                I authorize the TUTOR Association to processing of personal data, for communications related to advocates activities and international meeting.
                Yes, I agree

                by Giorgio Leone

                A time for patients to meet and share - december 21st

                A time for patients to meet and share (online).

                On December 21st there will be a new appointment of our “A time for patients to meet and share”.

                Where patients and family members can meet, understand, find one another, share experiences, feelings, needs and all they are experiencing.
                Also gather needs and ideas so that TUTOR can help all those who cope with a thymoma or a thymic carcinoma.

                The meeting will be held in English at 5-6 PM central europe time (beware of time zone)

                To participate, fill the form and you’ll receive a zoom’s link.

                  First Name*

                  Last Name*

                  Email Address*

                  City*

                  Country/Region*

                  Zip/Postal Code*

                  State/Province*

                  Phone*

                  You are*


                  Information you provide when registering will be shared with the account owner and host and can be used and shared by them in accordance with their Terms and Privacy Policy.

                  Pursuant to the GDPR 2016/679, I declare that I have read the information for the processing of personal data and consent to their processing only and exclusively to the extent necessary for the pursuit of the purposes (the absence of consent affects the possibility of receiving information).
                  I authorize the TUTOR Association to processing of personal data, for communications related to advocates activities and international meeting.
                  Yes, I agree

                  I authorize the TUTOR Association, free of charge, also pursuant to art. 10 and 320 cod. civ. and art. 96 and 97 law 22.4.1941, n. 633, Law on copyright, the use of photos or videos taken by operators or persons appointed by the Tutor Onlus association, for communication, publication and / or dissemination in any form on the website www.tumoritoracicirari.it, on social networks and on any other means of dissemination (newspapers or local newspapers), as well as authorizing the conservation of the photos and videos themselves in the IT archives of the same and acknowledges that the purpose of these publications are merely of an informative and possibly promotional nature and for institutional use. of the association, as well as authorizing the conservation of the photos and audio / video themselves in the computer archives of Associazione Tutor Onlus.
                  Yes, I agree


                  by Giorgio Leone

                  Video recording available on "Tell me your story: Patients and physicians open dialogue on Thymic Tumors"

                  It's now available the video-recording of "Tell me your story: Patients and physicians open dialogue on shared experiences on thymic tumors." with a video index available.

                  This 2nd webinar for PATIENTS with EURACAN ERN physician expert on Thymic Tumors (TET)  that was organized on May 10th 2023 during Thymic Malignancy Awareness Month (#TNAM).

                  This webinar involved the major physician experts on thymoma and thymic carcinoma of the Euracan ERN network.

                  Other webinar on thymic malignansies (thymoma and thymic carcinoma) organized during TNAM are available on ITMIG website

                  Please fill the below form and you'll receive the video-recording

                    First Name*

                    Last Name*

                    Email Address*

                    City*

                    Country/Region*

                    Zip/Postal Code*

                    State/Province*

                    Phone*

                    You are*


                    Information you provide when registering will be shared with the account owner and host and can be used and shared by them in accordance with their Terms and Privacy Policy.

                    Pursuant to the GDPR 2016/679, I declare that I have read the information for the processing of personal data and consent to their processing only and exclusively to the extent necessary for the pursuit of the purposes (the absence of consent affects the possibility of receiving information).
                    I authorize the TUTOR Association to processing of personal data, for communications related to advocates activities and international meeting.
                    Yes, I agree

                    by Michi

                    2nd Webinar for PATIENTS with EURACAN ERN physician expert on thymic tumors - May 10th, 2023

                    2nd Webinar for PATIENTS with EURACAN ERN physician expert on THYMOMA and THYMIC CARCINOMA

                    Tell me your story:
                    Patients and physicians open dialogue on shared experiences.

                    This webinar is aimed to share Patient’s experiences and information on thymic tumours, thymoma and thymic carcinoma, giving patients and caregivers the opportunity to have information directly from physician’s experts on this rare cancer. It also aims to promote discussion among paramount multidisciplinary speakers and promote collaboration between patient and physicians all over Europe.

                    The plenary session in english, will be followed by second session “country specific” where patients will have the opportunity to discuss and interact with their country expert on Thymic tumors (TET), thymoma and thymic carcinoma in their own language.

                    Patients with thymic tumors, as thymoma or thymic carcinoma, face several problems such as having limited information about the disease or reference centers; difficulty in making a timely and appropriate diagnosis, resulting in delayed or inadequate treatments; limited access to appropriate clinical expertise and limited access to available treatments.

                    EURACAN ERN is the network of European Healthcare Providers with expertise in the management of rare adult solid cancers as thymoma and thymic carcinoma. Thanks to EURACAN’s structure, clinicians and researchers across Europe can share expertise, knowledge and resources.
                    European Reference Networks (ERNs) are based on the founding principle of a patient-centered approach. The contribution and perspective of patients and their representatives is key to support the mission of ERNs in improving the quality and standard of care and the clinical research available for people living with a rare, complex disease.

                    TUTOR (rare thoracic tumors) is the Italian non-profit organization for patients with thymic tumors and mesothelioma and is E-PAG (European Patient Advocacy Group) at EURACAN for rare thoracic tumors. TUTOR, as E-PAG, is the patients voice collaborating closely with ERN’s coordinator and physicians to enhance access to care and foster research.

                    Agenda

                    Soon available the conference recording!

                    by Michi