A time for patients to meet and share - 21st March
A time for patients to meet and share (online).
On March 21st there will be a new appointment of our “A time for patients to meet and share”.
Where patients and family members can meet, understand, find one another, share experiences, feelings, needs and all they are experiencing.
Also gather needs and ideas so that TUTOR can help all those who cope with a thymoma or a thymic carcinoma.
The meeting will be held in English at 5-6 PM central europe time (beware of time zone)
Upcoming events:
18 April
16 May
20 June
18 July
19 September
17 October
21 November
19 December
To participate, fill the form and you’ll receive a zoom’s link.
A time for patients to meet and share - 15th February
A time for patients to meet and share (online).
On February 15th there will be a new appointment of our “A time for patients to meet and share”.
Where patients and family members can meet, understand, find one another, share experiences, feelings, needs and all they are experiencing.
Also gather needs and ideas so that TUTOR can help all those who cope with a thymoma or a thymic carcinoma.
The meeting will be held in English at 5-6 PM central europe time (beware of time zone)
Upcoming events:
21 March
18 April
16 May
20 June
18 July
19 September
17 October
21 November
19 December
To participate, fill the form and you’ll receive a zoom’s link.
A time for patients to meet and share - 18th January
A time for patients to meet and share (online).
On January 18th there will be a new appointment of our “A time for patients to meet and share”.
Where patients and family members can meet, understand, find one another, share experiences, feelings, needs and all they are experiencing.
Also gather needs and ideas so that TUTOR can help all those who cope with a thymoma or a thymic carcinoma.
The meeting will be held in English at 5-6 PM central europe time (beware of time zone)
Upcoming events:
15 February
21 March
18 April
16 May
20 June
18 July
19 September
17 October
21 November
19 December
To participate, fill the form and you’ll receive a zoom’s link.
Novità emerse dai congressi internazionali 2023 sul mesotelioma - Video disponibile
Il 15/11/23 si è svolto on line l'incontro "Novità emerse dai congressi internazionali 2023 sul mesotelioma" a cui hanno partecipato
Dr. Giovanni Luca Ceresoli, oncologo, Humanitas Gavazzeni, Bergamo
Prof. Francesco Facciolo, chirurgo toracico, IFO Regina Elena, Roma
Se non vi è stato possibile partecipare all'incontro, potete compilare il seguente modulo e riceverete i video dell'incontro.
A time for patients to meet and share - december 21st
A time for patients to meet and share (online).
On December 21st there will be a new appointment of our “A time for patients to meet and share”.
Where patients and family members can meet, understand, find one another, share experiences, feelings, needs and all they are experiencing.
Also gather needs and ideas so that TUTOR can help all those who cope with a thymoma or a thymic carcinoma.
The meeting will be held in English at 5-6 PM central europe time (beware of time zone)
To participate, fill the form and you’ll receive a zoom’s link.
Open TUTOR 2023 - Incontro per famigliari: per essere vicini “al meglio” ai nostri cari 24/10/23-Video disponibile
Il 24/10/23 alle 18 si è svolto on line il terzo incontro di "Open TUTOR: "SUI MIEI PASSI - Prima, Durante e Dopo il percorso di cura"" in cui abbiamo discusso con gli esperti
"Incontro per famigliari: per essere vicini “al meglio” ai nostri cari"
All'incontro hanno partecipato :
Oncologo Dr.ssa Giulia Galli, Policlinico San Matteo Pavia Fondazione IRCCS
Psico-oncologo Dr.ssa Ketty Mazzocco, IEO Istituto Europeo di Oncologia - Milano
Se non vi è stato possibile partecipare all'incontro, potete compilare il seguente modulo e riceverete i video dell'incontro
Open Tutor: conoscere per capire 2023 - Sui miei passi PRIMA, DURANTE E DOPO il percorso di cura"
Risposte che troppo spesso si cercano su internet, e a cui, durante gli incontri, risponderanno ️clinici esperti in tumori del timo (timoma e carcinoma timico) e mesotelioma. Saranno nostri relatori oncologi, chirurghi, radioterapisti, psicologi, terapisti del dolore, nutrizionisti, e fisioterapisti dei centri con maggior esperienza su queste rarissime patologie a livello nazionale.
A time for patients to meet and share
A time for patients to meet and share (online).
On the November 16th our “A time for patients to meet and share” will be on “Highlights from 2023 International congress on Thymic Tumors”.
Thanks to the following paramount clinicians, experts on Thymic Tumors (Thymoma and thymic carcinoma), we’ll have the opportunity to know all the 2023 international congress highlights
Dr Nicolas Girard, medical oncologist, Istitut Curie, Paris, France
Dr Paolo Mendogni, thoracic surgeon, Fondazione IRCCS Ca’ Granda Ospedale Maggiore Policlinico
Dr Andreas Rimner, radiation oncologist, Memorial Sloan Kettering Cancer Center, New York, US
The meeting will be held in English at 5-6 PM central europe time (beware of time zone)
To participate, fill the form and you’ll receive a zoom’s link.
2nd Webinar for PATIENTS with EURACAN ERN physician expert on thymic tumors - May 10th, 2023
2nd Webinar for PATIENTS with EURACAN ERN physician expert on THYMOMA and THYMIC CARCINOMA
Tell me your story:
Patients and physicians open dialogue on shared experiences.
This webinar is aimed to share Patient’s experiences and information on thymic tumours, thymoma and thymic carcinoma, giving patients and caregivers the opportunity to have information directly from physician’s experts on this rare cancer. It also aims to promote discussion among paramount multidisciplinary speakers and promote collaboration between patient and physicians all over Europe.
The plenary session in english, will be followed by second session “country specific” where patients will have the opportunity to discuss and interact with their country expert on Thymic tumors (TET), thymoma and thymic carcinoma in their own language.
Patients with thymic tumors, as thymoma or thymic carcinoma, face several problems such as having limited information about the disease or reference centers; difficulty in making a timely and appropriate diagnosis, resulting in delayed or inadequate treatments; limited access to appropriate clinical expertise and limited access to available treatments.
EURACAN ERN is the network of European Healthcare Providers with expertise in the management of rare adult solid cancers as thymoma and thymic carcinoma. Thanks to EURACAN’s structure, clinicians and researchers across Europe can share expertise, knowledge and resources.
European Reference Networks (ERNs) are based on the founding principle of a patient-centered approach. The contribution and perspective of patients and their representatives is key to support the mission of ERNs in improving the quality and standard of care and the clinical research available for people living with a rare, complex disease.
TUTOR (rare thoracic tumors) is the Italian non-profit organization for patients with thymic tumors and mesothelioma and is E-PAG (European Patient Advocacy Group) at EURACAN for rare thoracic tumors. TUTOR, as E-PAG, is the patients voice collaborating closely with ERN’s coordinator and physicians to enhance access to care and foster research.
Soon available the conference recording!
Rare Disease Day 2023
Il 28 Febbraio di ogni anno si celebra la Giornata delle Malattie Rare. Questo evento mondiale ha come obiettivo quello di aumentare la consapevolezza delle malattie rare e dell'effetto che hanno sulla vita dei pazienti che ne sono affetti. TUTOR pone la sua attenzione sui tumori toracici rari e sui pazienti di questo tipo di patologie (Timoma, Carcinoma timico e mesotelioma).
Restiamo uniti, perchè siamo rari, ma non per questo invisibili!