A time for patients to meet and share - 18th April
A time for patients to meet and share (online).
On April 18th there will be a new appointment of our “A time for patients to meet and share”.
Where patients and family members can meet, understand, find one another, share experiences, feelings, needs and all they are experiencing.
Also gather needs and ideas so that TUTOR can help all those who cope with a thymoma or a thymic carcinoma.
The meeting will be held in English at 5-6 PM central europe time (beware of time zone)
Upcoming events:
16 May
20 June
18 July
19 September
17 October
21 November
19 December
To participate, fill the form and you’ll receive a zoom’s link.
A time for patients to meet and share - 21st March
A time for patients to meet and share (online).
On March 21st there will be a new appointment of our “A time for patients to meet and share”.
Where patients and family members can meet, understand, find one another, share experiences, feelings, needs and all they are experiencing.
Also gather needs and ideas so that TUTOR can help all those who cope with a thymoma or a thymic carcinoma.
The meeting will be held in English at 5-6 PM central europe time (beware of time zone)
Upcoming events:
18 April
16 May
20 June
18 July
19 September
17 October
21 November
19 December
To participate, fill the form and you’ll receive a zoom’s link.
A time for patients to meet and share - 15th February
A time for patients to meet and share (online).
On February 15th there will be a new appointment of our “A time for patients to meet and share”.
Where patients and family members can meet, understand, find one another, share experiences, feelings, needs and all they are experiencing.
Also gather needs and ideas so that TUTOR can help all those who cope with a thymoma or a thymic carcinoma.
The meeting will be held in English at 5-6 PM central europe time (beware of time zone)
Upcoming events:
21 March
18 April
16 May
20 June
18 July
19 September
17 October
21 November
19 December
To participate, fill the form and you’ll receive a zoom’s link.
A time for patients to meet and share - 18th January
A time for patients to meet and share (online).
On January 18th there will be a new appointment of our “A time for patients to meet and share”.
Where patients and family members can meet, understand, find one another, share experiences, feelings, needs and all they are experiencing.
Also gather needs and ideas so that TUTOR can help all those who cope with a thymoma or a thymic carcinoma.
The meeting will be held in English at 5-6 PM central europe time (beware of time zone)
Upcoming events:
15 February
21 March
18 April
16 May
20 June
18 July
19 September
17 October
21 November
19 December
To participate, fill the form and you’ll receive a zoom’s link.
Video recording available on "Highlights from 2023 International congress on Thymic Tumor"
It's now available the video-recording of "Highlights from 2023 International congress on Thymic Tumors”, organized by TUTOR, italian patient's organization, on 16th November 2023 with the partecipation of the following paramount panelist:
Nicolas Girard, oncologist, Ist. Curie Paris, France
Paolo Mendogni, thoracic surgeon, Policlinico Milano, Italy
Andreas Rimner, radiation oncologist, Memorial Sloan Kettering, NY, US
Please fill the below form and you'll receive the video-recording
Novità emerse dai congressi internazionali 2023 sul mesotelioma - Video disponibile
Il 15/11/23 si è svolto on line l'incontro "Novità emerse dai congressi internazionali 2023 sul mesotelioma" a cui hanno partecipato
Dr. Giovanni Luca Ceresoli, oncologo, Humanitas Gavazzeni, Bergamo
Prof. Francesco Facciolo, chirurgo toracico, IFO Regina Elena, Roma
Se non vi è stato possibile partecipare all'incontro, potete compilare il seguente modulo e riceverete i video dell'incontro.
A time for patients to meet and share - december 21st
A time for patients to meet and share (online).
On December 21st there will be a new appointment of our “A time for patients to meet and share”.
Where patients and family members can meet, understand, find one another, share experiences, feelings, needs and all they are experiencing.
Also gather needs and ideas so that TUTOR can help all those who cope with a thymoma or a thymic carcinoma.
The meeting will be held in English at 5-6 PM central europe time (beware of time zone)
To participate, fill the form and you’ll receive a zoom’s link.
Video recording available on "Tell me your story: Patients and physicians open dialogue on Thymic Tumors"
It's now available the video-recording of "Tell me your story: Patients and physicians open dialogue on shared experiences on thymic tumors." with a video index available.
This 2nd webinar for PATIENTS with EURACAN ERN physician expert on Thymic Tumors (TET) that was organized on May 10th 2023 during Thymic Malignancy Awareness Month (#TNAM).
This webinar involved the major physician experts on thymoma and thymic carcinoma of the Euracan ERN network.
Other webinar on thymic malignansies (thymoma and thymic carcinoma) organized during TNAM are available on ITMIG website
Please fill the below form and you'll receive the video-recording
A time for patients to meet and share
A time for patients to meet and share (online).
On the November 16th our “A time for patients to meet and share” will be on “Highlights from 2023 International congress on Thymic Tumors”.
Thanks to the following paramount clinicians, experts on Thymic Tumors (Thymoma and thymic carcinoma), we’ll have the opportunity to know all the 2023 international congress highlights
Dr Nicolas Girard, medical oncologist, Istitut Curie, Paris, France
Dr Paolo Mendogni, thoracic surgeon, Fondazione IRCCS Ca’ Granda Ospedale Maggiore Policlinico
Dr Andreas Rimner, radiation oncologist, Memorial Sloan Kettering Cancer Center, New York, US
The meeting will be held in English at 5-6 PM central europe time (beware of time zone)
To participate, fill the form and you’ll receive a zoom’s link.
CALENDARIO ATTIVITA'- MAGGIO MESE DELLA SENSIBILIZZAZIONE SUI TUMORI DEL TIMO #TNAM 2023
Maggio è il mese della Sensibilizzazione dei Tumori del Timo, #TMAM (Thymic Malignansies Awareness Month)
Anche quest’anno saranno varie le attività che saranno organizzate a livello internazionale: un calendario con tutte le attività è presente sul sito #ITMIG (International Thymic Malignansies Interest Group), la società scientifica internazionale su https://itmig.org/tmam/.
In italia queste le attività che si svolgeranno:
- 10/5/23 alle 13-18 (CET), un webinar in lingua inglese dedicato ai pazienti su “Tell me your story: Patients and physicians open dialogue on shared experiences on Thymic Tumors”, secondo webinar per pazienti con medici esperti sui tumori del timo della rete europea EURACAN-ERN. Alla sessione generale in inglese seguiranno delle sessioni in cui i pazienti potranno rivolgere delle domande nella propria lingua ai medici operanti nella loro nazione. Sono organizzate sessioni per Francia e Belgio. Ulteriori sessioni in base alle richieste dei pazienti.
TUTOR dal 2021 è E-PAG (European Patient Advocate Group) in EURACAN ERN, cioè rappresentante e voce dei pazienti europei nella rete EURACAN, che si occupa dello studio e della ricerca dei Tumori Rari solidi dell’Adulto.
Partecipazione gratuita previa iscrizione su https://www.tumoritoracicirari.it/2023/03/21/euracan-10-5-2023/
- sempre il 10/5/23 , dalle 17.00 alle 18.00, il network scientifico TYME per i tumori del timo, ha organizzato con AIOM per oncologi un webinar “ Il trattamento dei tumori del timo: parole chiave rete e multidisciplinarietà”, rivolto agli oncologi con un focus su chirurgia e radioterapia e sul lavoro portato avanti da TYME. Per iscrizioni e agenda https://www.aiom.it/eventi-aiom/2023-merc-il-trattamento-dei-tumori-del-timo-parole-chiave-rete-e-multidisciplinarieta/
- Il 26/5/2023 alle 16:00 un webinar organizzato da TYME “Tumori del Timo: il network TYME e l’importanza di un approccio multidisciplinare” con lo scopo di condividere insieme ai pazienti con timoma e carcinoma timico ed ai loro familiari l’organizzazione, il ruolo e gli obiettivi del network TYME e della nostra associazione TUTOR, e di presentare l’importanza di un approccio multidisciplinare per la gestione delle neoplasia timiche.
Partecipazione gratuita previa registrazione su https://www.tumoritoracicirari.it/2023/04/20/tyme-incontra-i-pazienti/).