Finding the missing pieces: Empowering collaboration. Patients and Physicians Unite Against Thymic Carcinoma and Thymoma- May 14th, 2024- 1- 6.30 pm CET
Finding the missing pieces: Empowering collaboration
Patients and Physicians Unite Against Thymic Carcinoma and Thymoma
3rd Webinar for PATIENTS with EURACAN ERN physician expert on THYMOMA and THYMIC CARCINOMA
This webinar is aimed to share information on thymoma and thymic carcinoma, giving patients and caregivers the opportunity to have information directly from physician paramount experts on thymic tumors and to listen to other patient’s experience in coping with Thymic tumors.
It also aims to promote discussion among multidisciplinary speakers and promote collaboration between patient and physicians internationally.
The webinar will be held in english.
This webinar is dedicated to addressing the specific needs and concerns of person affected by thymoma and thymic carcinoma.
Assembled in a virtual space, the webinar offers accessibility to patients worldwide, ensuring that they can participate regardless of geographical location.
Throughout the event, the agenda is crafted to focus on providing answers to the most common questions faced by patients and caregivers: topics such as misdiagnosis, limited access to care, treatment complexities, emotional distress, lack of support resources,
financial strain, and long-term survivorship challenges are all addressed.
By facilitating collaboration among patients, healthcare professionals, and advocacy groups, the webinar aims to accelerate progress in research and treatment while empowering patients to take an active role in their care journey.
A distinguishing feature of the webinar is the inclusion lecture where patients share their personal experiences. These firsthand accounts offer invaluable insights, empathy, and practical advice to others navigating similar challenges, creating a supportive
community environment.
The sessions will provide attendees with practical tools and insights to navigate their condition with confidence.
Additionally, dedicated sessions on finding expert doctors, accessing clinical studies, and standardizing care seek to bridge information gaps and ensure equitable access to quality care for all affected individuals.
Ultimately, the webinar is aimed to serve as a powerful platform for addressing patients and caregivers needs, fostering collaboration, and driving positive outcomes in thymic tumor management on a global scale.
Fill in the following form to register
A time for patients to meet and share - 18th April
A time for patients to meet and share (online).
On April 18th there will be a new appointment of our “A time for patients to meet and share”.
Where patients and family members can meet, understand, find one another, share experiences, feelings, needs and all they are experiencing.
Also gather needs and ideas so that TUTOR can help all those who cope with a thymoma or a thymic carcinoma.
The meeting will be held in English at 5-6 PM central europe time (beware of time zone)
Upcoming events:
16 May
20 June
18 July
19 September
17 October
21 November
19 December
To participate, fill the form and you’ll receive a zoom’s link.
A time for patients to meet and share - 21st March
A time for patients to meet and share (online).
On March 21st there will be a new appointment of our “A time for patients to meet and share”.
Where patients and family members can meet, understand, find one another, share experiences, feelings, needs and all they are experiencing.
Also gather needs and ideas so that TUTOR can help all those who cope with a thymoma or a thymic carcinoma.
The meeting will be held in English at 5-6 PM central europe time (beware of time zone)
Upcoming events:
18 April
16 May
20 June
18 July
19 September
17 October
21 November
19 December
To participate, fill the form and you’ll receive a zoom’s link.
A time for patients to meet and share - 15th February
A time for patients to meet and share (online).
On February 15th there will be a new appointment of our “A time for patients to meet and share”.
Where patients and family members can meet, understand, find one another, share experiences, feelings, needs and all they are experiencing.
Also gather needs and ideas so that TUTOR can help all those who cope with a thymoma or a thymic carcinoma.
The meeting will be held in English at 5-6 PM central europe time (beware of time zone)
Upcoming events:
21 March
18 April
16 May
20 June
18 July
19 September
17 October
21 November
19 December
To participate, fill the form and you’ll receive a zoom’s link.
A time for patients to meet and share - 18th January
A time for patients to meet and share (online).
On January 18th there will be a new appointment of our “A time for patients to meet and share”.
Where patients and family members can meet, understand, find one another, share experiences, feelings, needs and all they are experiencing.
Also gather needs and ideas so that TUTOR can help all those who cope with a thymoma or a thymic carcinoma.
The meeting will be held in English at 5-6 PM central europe time (beware of time zone)
Upcoming events:
15 February
21 March
18 April
16 May
20 June
18 July
19 September
17 October
21 November
19 December
To participate, fill the form and you’ll receive a zoom’s link.
Video recording available on "Highlights from 2023 International congress on Thymic Tumor"
It's now available the video-recording of "Highlights from 2023 International congress on Thymic Tumors”, organized by TUTOR, italian patient's organization, on 16th November 2023 with the partecipation of the following paramount panelist:
Nicolas Girard, oncologist, Ist. Curie Paris, France
Paolo Mendogni, thoracic surgeon, Policlinico Milano, Italy
Andreas Rimner, radiation oncologist, Memorial Sloan Kettering, NY, US
Please fill the below form and you'll receive the video-recording
A time for patients to meet and share - december 21st
A time for patients to meet and share (online).
On December 21st there will be a new appointment of our “A time for patients to meet and share”.
Where patients and family members can meet, understand, find one another, share experiences, feelings, needs and all they are experiencing.
Also gather needs and ideas so that TUTOR can help all those who cope with a thymoma or a thymic carcinoma.
The meeting will be held in English at 5-6 PM central europe time (beware of time zone)
To participate, fill the form and you’ll receive a zoom’s link.
Open TUTOR 2023 - Incontro per famigliari: per essere vicini “al meglio” ai nostri cari 24/10/23-Video disponibile
Il 24/10/23 alle 18 si è svolto on line il terzo incontro di "Open TUTOR: "SUI MIEI PASSI - Prima, Durante e Dopo il percorso di cura"" in cui abbiamo discusso con gli esperti
"Incontro per famigliari: per essere vicini “al meglio” ai nostri cari"
All'incontro hanno partecipato :
Oncologo Dr.ssa Giulia Galli, Policlinico San Matteo Pavia Fondazione IRCCS
Psico-oncologo Dr.ssa Ketty Mazzocco, IEO Istituto Europeo di Oncologia - Milano
Se non vi è stato possibile partecipare all'incontro, potete compilare il seguente modulo e riceverete i video dell'incontro
Video recording available on "Tell me your story: Patients and physicians open dialogue on Thymic Tumors"
It's now available the video-recording of "Tell me your story: Patients and physicians open dialogue on shared experiences on thymic tumors." with a video index available.
This 2nd webinar for PATIENTS with EURACAN ERN physician expert on Thymic Tumors (TET) that was organized on May 10th 2023 during Thymic Malignancy Awareness Month (#TNAM).
This webinar involved the major physician experts on thymoma and thymic carcinoma of the Euracan ERN network.
Other webinar on thymic malignansies (thymoma and thymic carcinoma) organized during TNAM are available on ITMIG website
Please fill the below form and you'll receive the video-recording
A time for patients to meet and share
A time for patients to meet and share (online).
On the November 16th our “A time for patients to meet and share” will be on “Highlights from 2023 International congress on Thymic Tumors”.
Thanks to the following paramount clinicians, experts on Thymic Tumors (Thymoma and thymic carcinoma), we’ll have the opportunity to know all the 2023 international congress highlights
Dr Nicolas Girard, medical oncologist, Istitut Curie, Paris, France
Dr Paolo Mendogni, thoracic surgeon, Fondazione IRCCS Ca’ Granda Ospedale Maggiore Policlinico
Dr Andreas Rimner, radiation oncologist, Memorial Sloan Kettering Cancer Center, New York, US
The meeting will be held in English at 5-6 PM central europe time (beware of time zone)
To participate, fill the form and you’ll receive a zoom’s link.