A time for patients to meet and share - 21st March

A time for patients to meet and share (online).

On March 21st there will be a new appointment of our “A time for patients to meet and share”.

Where patients and family members can meet, understand, find one another, share experiences, feelings, needs and all they are experiencing.
Also gather needs and ideas so that TUTOR can help all those who cope with a thymoma or a thymic carcinoma.

The meeting will be held in English at 5-6 PM central europe time (beware of time zone)

Upcoming events:
18 April
16 May
20 June
18 July
19 September
17 October
21 November
19 December

To participate, fill the form and you’ll receive a zoom’s link.

    First Name*

    Last Name*

    Email Address*

    City*

    Country/Region*

    Zip/Postal Code*

    State/Province*

    Phone*

    You are*


    Information you provide when registering will be shared with the account owner and host and can be used and shared by them in accordance with their Terms and Privacy Policy.


    Pursuant to the GDPR 2016/679, I declare that I have read the information for the processing of personal data and consent to their processing only and exclusively to the extent necessary for the pursuit of the purposes (the absence of consent affects the possibility of receiving information).
    I authorize the TUTOR Association to processing of personal data, for communications related to advocates activities and international meeting.
    Yes, I agree


    I authorize the TUTOR Association, free of charge, also pursuant to art. 10 and 320 cod. civ. and art. 96 and 97 law 22.4.1941, n. 633, Law on copyright, the use of photos or videos taken by operators or persons appointed by the Tutor Onlus association, for communication, publication and / or dissemination in any form on the website www.tumoritoracicirari.it, on social networks and on any other means of dissemination (newspapers or local newspapers), as well as authorizing the conservation of the photos and videos themselves in the IT archives of the same and acknowledges that the purpose of these publications are merely of an informative and possibly promotional nature and for institutional use. of the association, as well as authorizing the conservation of the photos and audio / video themselves in the computer archives of Associazione Tutor Onlus.
    Yes, I agree




    A time for patients to meet and share - 15th February

    A time for patients to meet and share (online).

    On February 15th there will be a new appointment of our “A time for patients to meet and share”.

    Where patients and family members can meet, understand, find one another, share experiences, feelings, needs and all they are experiencing.
    Also gather needs and ideas so that TUTOR can help all those who cope with a thymoma or a thymic carcinoma.

    The meeting will be held in English at 5-6 PM central europe time (beware of time zone)

    Upcoming events:
    21 March
    18 April
    16 May
    20 June
    18 July
    19 September
    17 October
    21 November
    19 December

    To participate, fill the form and you’ll receive a zoom’s link.

      First Name*

      Last Name*

      Email Address*

      City*

      Country/Region*

      Zip/Postal Code*

      State/Province*

      Phone*

      You are*


      Information you provide when registering will be shared with the account owner and host and can be used and shared by them in accordance with their Terms and Privacy Policy.


      Pursuant to the GDPR 2016/679, I declare that I have read the information for the processing of personal data and consent to their processing only and exclusively to the extent necessary for the pursuit of the purposes (the absence of consent affects the possibility of receiving information).
      I authorize the TUTOR Association to processing of personal data, for communications related to advocates activities and international meeting.
      Yes, I agree


      I authorize the TUTOR Association, free of charge, also pursuant to art. 10 and 320 cod. civ. and art. 96 and 97 law 22.4.1941, n. 633, Law on copyright, the use of photos or videos taken by operators or persons appointed by the Tutor Onlus association, for communication, publication and / or dissemination in any form on the website www.tumoritoracicirari.it, on social networks and on any other means of dissemination (newspapers or local newspapers), as well as authorizing the conservation of the photos and videos themselves in the IT archives of the same and acknowledges that the purpose of these publications are merely of an informative and possibly promotional nature and for institutional use. of the association, as well as authorizing the conservation of the photos and audio / video themselves in the computer archives of Associazione Tutor Onlus.
      Yes, I agree




      A time for patients to meet and share - 18th January

      A time for patients to meet and share (online).

      On January 18th there will be a new appointment of our “A time for patients to meet and share”.

      Where patients and family members can meet, understand, find one another, share experiences, feelings, needs and all they are experiencing.
      Also gather needs and ideas so that TUTOR can help all those who cope with a thymoma or a thymic carcinoma.

      The meeting will be held in English at 5-6 PM central europe time (beware of time zone)

      Upcoming events:
      15 February
      21 March
      18 April
      16 May
      20 June
      18 July
      19 September
      17 October
      21 November
      19 December

      To participate, fill the form and you’ll receive a zoom’s link.

        First Name*

        Last Name*

        Email Address*

        City*

        Country/Region*

        Zip/Postal Code*

        State/Province*

        Phone*

        You are*


        Information you provide when registering will be shared with the account owner and host and can be used and shared by them in accordance with their Terms and Privacy Policy.


        Pursuant to the GDPR 2016/679, I declare that I have read the information for the processing of personal data and consent to their processing only and exclusively to the extent necessary for the pursuit of the purposes (the absence of consent affects the possibility of receiving information).
        I authorize the TUTOR Association to processing of personal data, for communications related to advocates activities and international meeting.
        Yes, I agree


        I authorize the TUTOR Association, free of charge, also pursuant to art. 10 and 320 cod. civ. and art. 96 and 97 law 22.4.1941, n. 633, Law on copyright, the use of photos or videos taken by operators or persons appointed by the Tutor Onlus association, for communication, publication and / or dissemination in any form on the website www.tumoritoracicirari.it, on social networks and on any other means of dissemination (newspapers or local newspapers), as well as authorizing the conservation of the photos and videos themselves in the IT archives of the same and acknowledges that the purpose of these publications are merely of an informative and possibly promotional nature and for institutional use. of the association, as well as authorizing the conservation of the photos and audio / video themselves in the computer archives of Associazione Tutor Onlus.
        Yes, I agree




        Video recording available on "Highlights from 2023 International congress on Thymic Tumor"


        It's now available the video-recording of "Highlights from 2023 International congress on Thymic Tumors”, organized by TUTOR, italian patient's organization, on 16th November 2023 with the partecipation of the following paramount panelist:
        Nicolas Girard, oncologist, Ist. Curie Paris, France
        Paolo Mendogni, thoracic surgeon, Policlinico Milano, Italy
        Andreas Rimner, radiation oncologist, Memorial Sloan Kettering, NY, US

        Please fill the below form and you'll receive the video-recording

          First Name*

          Last Name*

          Email Address*

          City*

          Country/Region*

          Zip/Postal Code*

          State/Province*

          Phone*

          You are*


          Information you provide when registering will be shared with the account owner and host and can be used and shared by them in accordance with their Terms and Privacy Policy.


          Pursuant to the GDPR 2016/679, I declare that I have read the information for the processing of personal data and consent to their processing only and exclusively to the extent necessary for the pursuit of the purposes (the absence of consent affects the possibility of receiving information).
          I authorize the TUTOR Association to processing of personal data, for communications related to advocates activities and international meeting.
          Yes, I agree



          A time for patients to meet and share - december 21st

          A time for patients to meet and share (online).

          On December 21st there will be a new appointment of our “A time for patients to meet and share”.

          Where patients and family members can meet, understand, find one another, share experiences, feelings, needs and all they are experiencing.
          Also gather needs and ideas so that TUTOR can help all those who cope with a thymoma or a thymic carcinoma.

          The meeting will be held in English at 5-6 PM central europe time (beware of time zone)

          To participate, fill the form and you’ll receive a zoom’s link.

            First Name*

            Last Name*

            Email Address*

            City*

            Country/Region*

            Zip/Postal Code*

            State/Province*

            Phone*

            You are*


            Information you provide when registering will be shared with the account owner and host and can be used and shared by them in accordance with their Terms and Privacy Policy.


            Pursuant to the GDPR 2016/679, I declare that I have read the information for the processing of personal data and consent to their processing only and exclusively to the extent necessary for the pursuit of the purposes (the absence of consent affects the possibility of receiving information).
            I authorize the TUTOR Association to processing of personal data, for communications related to advocates activities and international meeting.
            Yes, I agree


            I authorize the TUTOR Association, free of charge, also pursuant to art. 10 and 320 cod. civ. and art. 96 and 97 law 22.4.1941, n. 633, Law on copyright, the use of photos or videos taken by operators or persons appointed by the Tutor Onlus association, for communication, publication and / or dissemination in any form on the website www.tumoritoracicirari.it, on social networks and on any other means of dissemination (newspapers or local newspapers), as well as authorizing the conservation of the photos and videos themselves in the IT archives of the same and acknowledges that the purpose of these publications are merely of an informative and possibly promotional nature and for institutional use. of the association, as well as authorizing the conservation of the photos and audio / video themselves in the computer archives of Associazione Tutor Onlus.
            Yes, I agree




            Open TUTOR 2023 - Incontro per famigliari: per essere vicini “al meglio” ai nostri cari 24/10/23-Video disponibile

            Il 24/10/23 alle 18 si è svolto on line il terzo incontro di "Open TUTOR: "SUI MIEI PASSI - Prima, Durante e Dopo il percorso di cura"" in cui abbiamo discusso con gli esperti
            "Incontro per famigliari: per essere vicini “al meglio” ai nostri cari"

            All'incontro hanno partecipato :
            Oncologo Dr.ssa Giulia Galli, Policlinico San Matteo Pavia Fondazione IRCCS
            Psico-oncologo Dr.ssa Ketty Mazzocco, IEO Istituto Europeo di Oncologia - Milano

            Se non vi è stato possibile partecipare all'incontro, potete compilare il seguente modulo e riceverete i video dell'incontro

              Cognome (richiesto)

              Nome (richiesto)

              Città (richiesto)

              Cellulare (richiesto)

              Indirizzo email (richiesto)

              Sei un:
              pazientefamigliarealtro

              A quale patologia sei interessato?


              Ai sensi del GDPR 2016/679, dichiaro di aver preso visione dell'informativa per il trattamento dei dati personali e consento al loro trattamento solo ed esclusivamente nella misura necessaria per il perseguimento degli scopi (l’assenza di consenso pregiudica la possibilità di ricevere informazioni).
              Autorizzo Associazione TUTOR. al trattamento dei dati personali, per comunicazioni relative alle attività dell’associazione, per invio materiale, per svolgere attività di sensibilizzazione, di raccolta fondi e costituzione gruppi di interesse regionali.

              Sì, acconsento


              Video recording available on "Tell me your story: Patients and physicians open dialogue on Thymic Tumors"

              It's now available the video-recording of "Tell me your story: Patients and physicians open dialogue on shared experiences on thymic tumors." with a video index available.

              This 2nd webinar for PATIENTS with EURACAN ERN physician expert on Thymic Tumors (TETthat was organized on May 10th 2023 during Thymic Malignancy Awareness Month (#TNAM).

              This webinar involved the major physician experts on thymoma and thymic carcinoma of the Euracan ERN network.

              Other webinar on thymic malignansies (thymoma and thymic carcinoma) organized during TNAM are available on ITMIG website

              Please fill the below form and you'll receive the video-recording

                First Name*

                Last Name*

                Email Address*

                City*

                Country/Region*

                Zip/Postal Code*

                State/Province*

                Phone*

                You are*


                Information you provide when registering will be shared with the account owner and host and can be used and shared by them in accordance with their Terms and Privacy Policy.


                Pursuant to the GDPR 2016/679, I declare that I have read the information for the processing of personal data and consent to their processing only and exclusively to the extent necessary for the pursuit of the purposes (the absence of consent affects the possibility of receiving information).
                I authorize the TUTOR Association to processing of personal data, for communications related to advocates activities and international meeting.
                Yes, I agree



                A time for patients to meet and share

                A time for patients to meet and share (online).

                On the November 16th our “A time for patients to meet and share” will be on “Highlights from 2023 International congress on Thymic Tumors”.

                Thanks to the following paramount clinicians, experts on Thymic Tumors (Thymoma and thymic carcinoma), we’ll have the opportunity to know all the 2023 international congress highlights
                Dr Nicolas Girard, medical oncologist, Istitut Curie, Paris, France
                Dr Paolo Mendogni, thoracic surgeon, Fondazione IRCCS Ca’ Granda Ospedale Maggiore Policlinico
                Dr Andreas Rimner, radiation oncologist, Memorial Sloan Kettering Cancer Center, New York, US

                The meeting will be held in English at 5-6 PM central europe time (beware of time zone)

                To participate, fill the form and you’ll receive a zoom’s link.

                  First Name*

                  Last Name*

                  Email Address*

                  City*

                  Country/Region*

                  Zip/Postal Code*

                  State/Province*

                  Phone*

                  You are*


                  Information you provide when registering will be shared with the account owner and host and can be used and shared by them in accordance with their Terms and Privacy Policy.


                  Pursuant to the GDPR 2016/679, I declare that I have read the information for the processing of personal data and consent to their processing only and exclusively to the extent necessary for the pursuit of the purposes (the absence of consent affects the possibility of receiving information).
                  I authorize the TUTOR Association to processing of personal data, for communications related to advocates activities and international meeting.
                  Yes, I agree


                  I authorize the TUTOR Association, free of charge, also pursuant to art. 10 and 320 cod. civ. and art. 96 and 97 law 22.4.1941, n. 633, Law on copyright, the use of photos or videos taken by operators or persons appointed by the Tutor Onlus association, for communication, publication and / or dissemination in any form on the website www.tumoritoracicirari.it, on social networks and on any other means of dissemination (newspapers or local newspapers), as well as authorizing the conservation of the photos and videos themselves in the IT archives of the same and acknowledges that the purpose of these publications are merely of an informative and possibly promotional nature and for institutional use. of the association, as well as authorizing the conservation of the photos and audio / video themselves in the computer archives of Associazione Tutor Onlus.
                  Yes, I agree




                  CALENDARIO ATTIVITA'- MAGGIO MESE DELLA SENSIBILIZZAZIONE SUI TUMORI DEL TIMO #TNAM 2023

                  Maggio è il mese della Sensibilizzazione dei Tumori del Timo, #TMAM (Thymic Malignansies Awareness Month)

                  Anche quest’anno saranno varie le attività che saranno organizzate a livello internazionale: un calendario con tutte le attività è presente sul sito #ITMIG (International Thymic Malignansies Interest Group), la società scientifica internazionale su https://itmig.org/tmam/.

                  In italia queste le attività che si svolgeranno:

                  • 10/5/23 alle 13-18 (CET), un webinar in lingua inglese dedicato ai pazienti  su “Tell me your story: Patients and physicians open dialogue on shared experiences on Thymic Tumors”, secondo webinar per pazienti con medici esperti sui tumori del timo della rete europea EURACAN-ERN. Alla sessione generale in inglese seguiranno delle sessioni in cui i pazienti potranno rivolgere delle domande nella propria lingua ai medici operanti nella loro nazione. Sono organizzate sessioni per Francia e Belgio. Ulteriori sessioni in base alle richieste dei pazienti.
                    TUTOR dal 2021 è E-PAG
                    (European Patient Advocate Group) in EURACAN ERN, cioè rappresentante e voce dei pazienti europei nella rete EURACAN, che si occupa dello studio e della ricerca dei Tumori Rari solidi dell’Adulto.
                    Partecipazione gratuita previa iscrizione su https://www.tumoritoracicirari.it/2023/03/21/euracan-10-5-2023/

                   

                  • sempre il 10/5/23 , dalle 17.00 alle 18.00, il network scientifico TYME per i tumori del timo, ha organizzato con AIOM per oncologi un webinar Il trattamento dei tumori del timo: parole chiave rete e multidisciplinarietà”, rivolto agli oncologi con un focus su chirurgia e radioterapia e sul lavoro portato avanti da TYME. Per iscrizioni e agenda https://www.aiom.it/eventi-aiom/2023-merc-il-trattamento-dei-tumori-del-timo-parole-chiave-rete-e-multidisciplinarieta/

                   

                  • Il 26/5/2023 alle 16:00 un webinar organizzato da TYME “Tumori del Timo: il network TYME e l’importanza di un approccio multidisciplinare” con lo scopo di condividere insieme ai pazienti con timoma e carcinoma timico ed ai loro familiari l’organizzazione, il ruolo e gli obiettivi del network TYME e della nostra associazione TUTOR, e di presentare l’importanza di un approccio multidisciplinare per la gestione delle neoplasia timiche.
                    Partecipazione gratuita previa registrazione su https://www.tumoritoracicirari.it/2023/04/20/tyme-incontra-i-pazienti/).


                  2nd Webinar for PATIENTS with EURACAN ERN physician expert on thymic tumors - May 10th, 2023

                  2nd Webinar for PATIENTS with EURACAN ERN physician expert on THYMOMA and THYMIC CARCINOMA

                  Tell me your story:
                  Patients and physicians open dialogue on shared experiences.

                  This webinar is aimed to share Patient’s experiences and information on thymic tumours, thymoma and thymic carcinoma, giving patients and caregivers the opportunity to have information directly from physician’s experts on this rare cancer. It also aims to promote discussion among paramount multidisciplinary speakers and promote collaboration between patient and physicians all over Europe.

                  The plenary session in english, will be followed by second session “country specific” where patients will have the opportunity to discuss and interact with their country expert on Thymic tumors (TET), thymoma and thymic carcinoma in their own language.

                  Patients with thymic tumors, as thymoma or thymic carcinoma, face several problems such as having limited information about the disease or reference centers; difficulty in making a timely and appropriate diagnosis, resulting in delayed or inadequate treatments; limited access to appropriate clinical expertise and limited access to available treatments.

                  EURACAN ERN is the network of European Healthcare Providers with expertise in the management of rare adult solid cancers as thymoma and thymic carcinoma. Thanks to EURACAN’s structure, clinicians and researchers across Europe can share expertise, knowledge and resources.
                  European Reference Networks (ERNs) are based on the founding principle of a patient-centered approach. The contribution and perspective of patients and their representatives is key to support the mission of ERNs in improving the quality and standard of care and the clinical research available for people living with a rare, complex disease.

                  TUTOR (rare thoracic tumors) is the Italian non-profit organization for patients with thymic tumors and mesothelioma and is E-PAG (European Patient Advocacy Group) at EURACAN for rare thoracic tumors. TUTOR, as E-PAG, is the patients voice collaborating closely with ERN’s coordinator and physicians to enhance access to care and foster research.

                  Agenda

                  Soon available the conference recording!