A time for patients to meet and share - 20th February 2025

A time for patients to meet and share (online).

On January 16 there will be a new appointment of our “A time for patients to meet and share”.

Where patients and family members can meet, understand, find one another, share experiences, feelings, needs and all they are experiencing.
Also gather needs and ideas so that TUTOR can help all those who cope with a thymoma or a thymic carcinoma.

The meeting will be held in English at 5-6 PM central europe time (beware of time zone)

Upcoming events:

20 march 2025
17 april 2025
15 may 2025
19 june 2025
17 july 2025
21 august 2025
18 september 2025
16 october 2025
20 novemeber 2025
18 december 2025

Click here to join us!

A time for patients to meet and share - 16th January 2025

A time for patients to meet and share (online).

On January 16 there will be a new appointment of our “A time for patients to meet and share”.

Where patients and family members can meet, understand, find one another, share experiences, feelings, needs and all they are experiencing.
Also gather needs and ideas so that TUTOR can help all those who cope with a thymoma or a thymic carcinoma.

The meeting will be held in English at 5-6 PM central europe time (beware of time zone)

Upcoming events:

20 february 2025
20 march 2025
17 april 2025
15 may 2025
19 june 2025
17 july 2025
21 august 2025
18 september 2025
16 october 2025
20 novemeber 2025
18 december 2025

Click here to join us!

A time for patients to meet and share - 19th December

A time for patients to meet and share (online).

On December 19th there will be a new appointment of our “A time for patients to meet and share”.

Where patients and family members can meet, understand, find one another, share experiences, feelings, needs and all they are experiencing.
Also gather needs and ideas so that TUTOR can help all those who cope with a thymoma or a thymic carcinoma.

The meeting will be held in English at 5-6 PM central europe time (beware of time zone)

Click here to join us!

Napoli 18/11/2024- I Convegno nazionale TUTOR per pazienti con tumori del timo con medici TYME

A Napoli il 18/11/24 si svolgerà il I Convegno nazionale TUTOR per i pazienti con tumori del timo, a cui famigliari e pazienti con timoma e carcinoma timico sono invitati a partecipare.
Tratteremo un tema importantissimo per tutti noi: la RICERCA in questo tumore così raro (circa 230 nuovi casi anno in Italia, Gatta et all 2017)

INSIEME PAZIENTI E RICERCATORI PER TERAPIE INNOVATIVE NEI TUMORI DEL TIMO”

Insieme ai medici di TYME, il network scientifico italiano per la cura e ricerca dei tumori del timo, discuteremo poter aumentare la ricerca su nuove terapie per la cura di timoma e carcinoma timico.
Nel pomeriggio si svolgerà il Congresso TYME a cui siamo invitati a partecipare: insieme a loro abbiamo infatti, definito argomenti di particolare interesse per famigliari e pazienti che saranno affrontati dagli specialisti..

La partecipazione è gratuita, previa iscrizione, sia in presenza sia online, a pazienti e famigliari affetti da timoma e carcinoma timico.

Il Convegno si svolgerà a Napoli, Aula Magna dell’AOU Federico II, il 18/11 dalle 10 alle 19.30, con il seguente Programma

Un ringraziamento particolare Le4A ODV , la cui donazione ha contribuito all’organizzazione del Convegno.

PER PARTECIPARE CLICCA QUI

A time for patients to meet and share - 17th October

A time for patients to meet and share (online).

On October 17th there will be a new appointment of our “A time for patients to meet and share”.

Where patients and family members can meet, understand, find one another, share experiences, feelings, needs and all they are experiencing.
Also gather needs and ideas so that TUTOR can help all those who cope with a thymoma or a thymic carcinoma.

The meeting will be held in English at 5-6 PM central europe time (beware of time zone)

Upcoming events:
21 November
19 December

Click here to join us!

Partecipa alla nascita della rete di centri esperti del mesotelioma in Italia (MET.I)

Il contributo dell’Italia alla ricerca sul mesotelioma è ampio con studi originali di centri e ricercatori italiani, l’arruolamento in studi internazionali, l’elaborazione di linee guida nazionali, la capacità di lavorare in rete su singoli progetti, la collaborazione con le associazioni di pazienti.

La creazione di MET.I (MEsothelioma Team Italy),  una rete nazionale di centri esperti nel mesotelioma, è un ulteriore passo avanti: per informare pazienti e chi si occupa di loro (familiari, caregivers, ecc.) e orientarli verso centri clinici di riferimento per la patologia sul territorio nazionale, per unire le idee e le competenze per la ricerca preclinica e clinica, e per potersi porre come il gruppo che rappresenta l’Italia nel contesto internazionale e nell’interazione con le aziende farmaceutiche.

MET.I avrà il suo primo congresso venerdì 11 ottobre a Milano, con una sessione specificamente dedicata ai pazienti e familiari nel pomeriggio, alle ore 14-17.30

Per partecipare in presenza (posti limitati) è possibile iscriversi, entro e non oltre il 6/10/24

Per partecipare on line con collegamento zoom, è possibile registrarsi al seguente link https://us02web.zoom.us/webinar/register/WN_wYj1CwxySgaYqruXRvDAWQ

Scarica qui il programma

Video recording available on "Finding the missing pieces: Patients and Physicians against Thymic Tumors" 2024

It's now available the video-recording of "Finding the missing pieces: Patients and Physicians against Thymic Tumors"with a video index available.

This 3rd webinar for PATIENTS with EURACAN ERN physician expert on Thymic Tumors (TETthat was organized on May 14th 2024 during Thymic Malignancy Awareness Month (#TNAM).

This webinar involved the major physician experts on thymoma and thymic carcinoma of the Euracan ERN network.

Other webinar on thymic malignansies (thymoma and thymic carcinoma) organized during TNAM are available on ITMIG website

Please fill the below form and you'll receive the video-recording

    First Name*

    Last Name*

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    City*

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    Information you provide when registering will be shared with the account owner and host and can be used and shared by them in accordance with their Terms and Privacy Policy.


    Pursuant to the GDPR 2016/679, I declare that I have read the information for the processing of personal data and consent to their processing only and exclusively to the extent necessary for the pursuit of the purposes (the absence of consent affects the possibility of receiving information).
    I authorize the TUTOR Association to processing of personal data, for communications related to advocates activities and international meeting.
    Yes, I agree



    Finding the missing pieces: Empowering collaboration. Patients and Physicians Unite Against Thymic Carcinoma and Thymoma- May 14th, 2024

    Finding the missing pieces: Empowering collaboration
    Patients and Physicians Unite Against Thymic Carcinoma and Thymoma

    3rd Webinar for PATIENTS with EURACAN ERN physician expert on THYMOMA and THYMIC CARCINOMA

    This webinar is aimed to share information on thymoma and thymic carcinoma, giving patients and caregivers the opportunity to have information directly from physician paramount  experts on thymic tumors and to listen to other patient’s experience in coping with Thymic tumors.
    It also aims to promote discussion among multidisciplinary speakers and promote collaboration between patient and physicians internationally.

    The webinar will be held in english.

    This webinar is dedicated to addressing the specific needs and concerns of person affected by thymoma and thymic carcinoma.
    Assembled in a virtual space, the webinar offers accessibility to patients worldwide, ensuring that they can participate regardless of geographical location.

    Throughout the event, the agenda is crafted to focus on providing answers to the most common questions faced by patients and caregivers: topics such as misdiagnosis, limited access to care, treatment complexities, emotional distress, lack of support resources,
    financial strain, and long-term survivorship challenges are all addressed.
    By facilitating collaboration among patients, healthcare professionals, and advocacy groups, the webinar aims to accelerate progress in research and treatment while empowering patients to take an active role in their care journey.

    A distinguishing feature of the webinar is the inclusion lecture where patients share their personal experiences. These firsthand accounts offer invaluable insights, empathy, and practical advice to others navigating similar challenges, creating a supportive
    community environment.
    The sessions will provide attendees with practical tools and insights to navigate their condition with confidence.
    Additionally, dedicated sessions on finding expert doctors, accessing clinical studies, and standardizing care seek to bridge information gaps and ensure equitable access to quality care for all affected individuals.

    Ultimately, the webinar is aimed to serve as a powerful platform for addressing patients and caregivers needs, fostering collaboration, and driving positive outcomes in thymic tumor management on a global scale.

    download the agendaClick here to register and join the webinar

    A time for patients to meet and share - Calendar 2024

    A time for patients to meet and share (online).

    A moment where patients and family members can meet, understand, find one another, share experiences, feelings, needs and all they are experiencing.
    Also gather needs and ideas so that TUTOR can help all those who cope with a thymoma or a thymic carcinoma.

    The meeting will be held in English at 5-6 PM central europe time (beware of time zone)

    CALENDAR 2024 Upcoming events:

    18 January
    15 February
    21 March
    18 April
    16 May
    20 June
    18 July
    19 September
    17 October
    21 November
    19 December

    To participate, fill the form and you’ll receive a zoom’s link.

      First Name*

      Last Name*

      Email Address*

      City*

      Country/Region*

      Zip/Postal Code*

      State/Province*

      Phone*

      You are*


      Information you provide when registering will be shared with the account owner and host and can be used and shared by them in accordance with their Terms and Privacy Policy.


      Pursuant to the GDPR 2016/679, I declare that I have read the information for the processing of personal data and consent to their processing only and exclusively to the extent necessary for the pursuit of the purposes (the absence of consent affects the possibility of receiving information).
      I authorize the TUTOR Association to processing of personal data, for communications related to advocates activities and international meeting.
      Yes, I agree


      I authorize the TUTOR Association, free of charge, also pursuant to art. 10 and 320 cod. civ. and art. 96 and 97 law 22.4.1941, n. 633, Law on copyright, the use of photos or videos taken by operators or persons appointed by the Tutor Onlus association, for communication, publication and / or dissemination in any form on the website www.tumoritoracicirari.it, on social networks and on any other means of dissemination (newspapers or local newspapers), as well as authorizing the conservation of the photos and videos themselves in the IT archives of the same and acknowledges that the purpose of these publications are merely of an informative and possibly promotional nature and for institutional use. of the association, as well as authorizing the conservation of the photos and audio / video themselves in the computer archives of Associazione Tutor Onlus.
      Yes, I agree




      Video recording available on "Highlights from 2023 International congress on Thymic Tumor"


      It's now available the video-recording of "Highlights from 2023 International congress on Thymic Tumors”, organized by TUTOR, italian patient's organization, on 16th November 2023 with the partecipation of the following paramount panelist:
      Nicolas Girard, oncologist, Ist. Curie Paris, France
      Paolo Mendogni, thoracic surgeon, Policlinico Milano, Italy
      Andreas Rimner, radiation oncologist, Memorial Sloan Kettering, NY, US

      Please fill the below form and you'll receive the video-recording

        First Name*

        Last Name*

        Email Address*

        City*

        Country/Region*

        Zip/Postal Code*

        State/Province*

        Phone*

        You are*


        Information you provide when registering will be shared with the account owner and host and can be used and shared by them in accordance with their Terms and Privacy Policy.


        Pursuant to the GDPR 2016/679, I declare that I have read the information for the processing of personal data and consent to their processing only and exclusively to the extent necessary for the pursuit of the purposes (the absence of consent affects the possibility of receiving information).
        I authorize the TUTOR Association to processing of personal data, for communications related to advocates activities and international meeting.
        Yes, I agree